Our Group Benefits Manager Trudi St Marie is a strong fundraiser for Duchenne’s Musular Dystrophy. This past Saturday she held the 5th Annual Trivia Night at our office which raised $7,100 in support of her cousin Louie Facca who was diagnosed with Duchenne’s when he was only 2 years old. To date the Trivia Night events have raised over $22,000!
Here’s Louie’s story:
Hello! My name is Louie Facca. For the most part I am just a normal 8 year old. When I was 2, my doctor said something was happening to my muscles… They call it Duchenne Muscular Dystrophy. If they don’t find medicine to help me, my dystrophin/protein of the muscle will die off and then my muscles will stop working.
Dystrophin is in my legs, heart, lungs, brain. Not all of us kids will effected with every condition at the same times, it will vary. The most common is a wheelchair and shortened lifespan. This doesn’t happen overnight, it is a progressive degenerative disease, so I have time to ask for HELP!
Researchers need money to keep working on a cure for me and all the other kids with Duchenne’s! In the meantime I will keep doing physiotherapy, daily stretching, swimming, anything to keep me strong. I wear leg braces to bed every night to keep my heel cords stretched out… I call them my hockey boots.
There is no cure….yet! That is why:
– My Grandpa Bob walked 500 km in 2012. He walked 4000 km in 2014 raising a combined total of 1 Million Dollars, and he was 65 years old when he did the big walk.
-My Family is having its 5th Garage Sale.
-My cousin Trudi and Russell are hosting their 5th Annual Trivia Night.
-Laps for Louie is in its 4th year of raising money to find a cure.
Like my Dad says: “There is no cure but hopefully, someday there will be and that’s why there is NO BAD DAYS! We wake up every morning and treat every day as a blessing! I will never have a bad day again in my life!”
On behalf of Louie and all Duchenne Families we thank you for all your support and helping us keep HOPE alive!